Working to achieve a policy decision making a drug reimbursable



Despite acknowledging the medical benefits of an innovative drug prescribed to treat a rare illness, public health authorities were slow to authorise its reimbursement.

Prescribed alongside a course of treatment, the drug in question delivered significant provable results in terms of improved survival rates but was seen as being too expensive, given the profile of the people most impacted. The association was keen to identify new mechanisms to create awareness of a rare pathology with very limited public recognition.

  • Creation of a political and media influence campaign
  • Drafting and distribution of an open letter to the health ministry with several thousand signatories
  • Media campaign and organisation of interviews
  • Awareness-raising among members of parliament (fifty or so written/oral questions)
  • Authorisation for the drug to be reimbursed